Benefit for Upper Township boy at Seaville Fire Co.

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  Jaxon Bellwoar, 20 months old, suffers from gross motor difficulties and delays as a result of several conditions. A benefit Saturday hopes to raise money for his continued treatment.
Jaxon Bellwoar, 20 months old, suffers from gross motor difficulties and delays as a result of several conditions. A benefit Saturday hopes to raise money for his continued treatment. SEAVILLE – The Seaville Volunteer Fire and Rescue Company will hold a benefit for the son of one of its captains on Saturday, May 17 at the firehouse, 36 Route 50 in Seaville.

Jaxon Bellwoar has spent more than five of his almost 20 months of life in hospitals. He has been diagnosed with several conditions, including hypotonia, microcephaly, hearing loss, FPies, EoE, and hyperinsulinimia.

Hypotonia (low muscle tone) and microcephaly (small brain) affect the way Jaxon’s brain communicates with his muscles, leaving him with many gross motor difficulties and delays. FPIES (Food Protein Induced Entercolitis Syndrome) and EoE (Eosinophillic Esophagitis) are both rare, delayed food allergies of the esophagus and stomach. Jaxon is fed via a feeding tube through his stomach 16 hours a day.

Doctors are still searching for Jax’s primary diagnosis, resulting in many expensive genetic blood tests, according to the fire company.

Jaxon’s father, Richard, is a captain with the Seaville fire company and a firefighter with the 177th Fighter Wing of the New Jersey Air National Guard. He also works for Atlantic City Electric. His mother, Sandie, started a blog called Jaxon’s Joyful Journey, which is written to her youngest son and details her son’s and family’s experience since Jaxon was born.

The couple lives in Marmora and has three other children – Callie, Zachary and Nathan.

The fire company is hoping to raise funds for Jaxon’s medical expenses, travel costs and equipment through the benefit. Its members recently purchased a ZipZac wheelchair for Jaxon. The wheelchair is made for children with special needs and helps him get around.

The benefit is scheduled for 6-10 p.m. on Saturday, May 17 at the Seaville firehouse. Tickets are $25. All donations are tax deductible.

A donation can also be made by writing a check to the First Bank of Sea Isle, 2072 Route 9, Ocean View, NJ 08230. Write “Jaxon Fund” in the memo line of the check.

For more information, call Melissa Blackledge at 609-839-5570, Michelle Sampson at 609-780-2262 or the Seaville Fire Company at 609-624-0122. 


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